You got my number. Sharing personal data for good


An interesting item in IT News today: Australia needs to link more healthcare data: MPs

‘Linking de-identified datasets from the likes of Medicare, hospitals and the Pharmaceutical Benefits Scheme would add billions into Australia’s economy and give doctors and policy makers a better understanding of how people use the healthcare system, Australian parliamentarians claim.’

‘Privacy law a stumbling block’

I was lucky enough to attend a talk recently and heard a novel and compelling approach, one that seems to transcend the usual discussion about the (fundamentally negative) trade-offs of digital privacy.

Rather than continue to allow third party organisations (private and public) to gather our personal and preference data, why not create a data privacy regime that puts the individual back in control of personal data?

Rather than build databases that aggregate government data about us, establish a framework that allows citizens to store and manage their encrypted data?

Privacy laws do make it harder for organisations to share data. So, why not federate data at the level where it makes most sense? The individual.

This approach, among other benefits, would allow individuals to monetise their preferences, selectively – and mindfully – selling their preferences, and in a way that only the preferences get shared with the third party.

A digital approach to ‘selling the food, not the farm’.

These are not original thoughts, but they are thought provoking.

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via Sharing personal data for good; and in a new way? | Brian Bailey | LinkedIn